never been able to eat. In April of 1995, there was a big ta do about him because he was the first of this type of transplant done in Missouri. Sadly he rejected on Novenber 29, 1995.
My liver went to a little girl from Kuwait who, at the time lived in Pennsylvania. She was two and was born with biliary artresia. She is doing fine and back living in her home country. She comes back to the US once a year for her check-ups though.........
My heart went to a little boy that was only three weeks old, He lives in California and was born with hypoplastic left heart. Just last week, my mommy and daddy got their first note and picture of that little boy. He is a cutie (he he just like me). He is now 5 years old and doing great. It was a great joy for my mommy and daddy to get this stuff. They had waited so long to hear something and now it all seems real to them. All they ever wanted was to know that they had done the right thing. I died suddenly and mommy and daddy didn't even know that I was sick. They tried very hard to find out why I wasn't growing but it was God's will for my cancers not to be found. He had a greater plan for me. You see God only gives us what we can handle and my mommy and daddy are strong - it was hard on them but they made it and are stronger for it.
When I say cancers, that wasn't a misprint. Although they tried to find what was wrong with me, God had a bigger plan for me.
I was born with reflux.... at 6 weeks I developed aspirated pneumonia and had to be hospitalized. I got better and then took a turn for the worst and had to be transferred to Cardinal Glennon Children's Hospital in St Louis, Mo. Mom and dad are very grateful for the Dr Salarda...... had she not have come to check on me that night who knows what would have happened. I got better after 6 days in CGCH and came home.... I had meds for my reflux so I could actually keep my formula down and started doing well....... For a while that is... In August of 94, when I was 8 months old they found out that I wasn't growing. SO mom and dad were sent back to CGCH with me to see if we could find out why. The first Dr didn't know so she sent us to an endocrinologist after drawing six tubes of blood from me. So we wait for that appointment........ and we didn't make that appointment because someone had decided that they needed our gas more than we did and had cyphoned it out the nite before.......... and we didn't realize and ended up running out of gas on the interstate on the way to the appointment. ........ So mom rescheduled.......... and we waited again.....
February 8th, 1995 was the day and it had finally come. We go to the appointment and those tests had come up with nothing and by now I hadn't grown in eight months........ So that Dr sets up an appointment with genetics.......
The next day I started getting really tired and just not acting myself. Mom knew that we had an appointment with my Dr the flowing day so she waited. We go to that appointment and I have an ear infection. SO we start meds for that. This was on Friday, February 10, 1995. That evening I started running a low grade temperature that mom and dad couldn't get to break. By Saturday at noon, Dad thought we needed to go to the ER so we did and were left in the waiting room for 4 1/2 hours until the ER doctor finally called me in and said that he didn't have time to look at me and called Dr Salarda. She came in did what she coudl and told me to call her in the morning. Mom and dad took me home and hoped that this would get better.
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