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HI, My name is JJ and I am my mommy and daddy's angel now. It's been five years since I have been gone and they seem to be ok now...... I was born on Christmas Eve 1993 (my mommy should've been careful what she asked for he he). I was baptized on the Feast of St Joseph (my first name is Joseph- isn't  that cool). I died on my grandma's birthday and was buried on the 6th anniversary of her death. This was God's way of telling my mom and dad that everything would be ok. Another thing that helps my mom and dad is to know that there are other kids living or living better lives because of my death...... you see they donated my organs... My small intestine went to a little boy that had small bowel syndrome. He was 10 years old and had
never been able to eat.  In April of 1995, there was a big ta do about him because he was the first of this type of transplant done in Missouri. Sadly he rejected on Novenber 29, 1995.

My liver went to a little girl from Kuwait who, at the time lived in Pennsylvania. She was two and was born with biliary artresia. She is doing fine and back living in her home country. She comes back to the US once a year for her check-ups though.........

My heart went to a little boy that was only three weeks old, He lives in California and was born with hypoplastic left heart. Just last week, my mommy and daddy got their first note and picture of that little boy. He is a cutie (he he just like me). He is now 5 years old and doing great.
It was a great joy for my mommy and daddy to get this stuff. They had waited so long to hear something and now it all seems real to them. All they ever wanted was to know that they had done the right thing. I died suddenly and mommy and daddy didn't even know  that I was sick. They tried very hard to find out why I wasn't growing but it was God's will for my cancers not to be found. He had a greater plan for me. You see God only gives us what we can handle and my mommy and daddy are strong - it was hard on them but they made it and are stronger for it.

When I say cancers, that wasn't a misprint. Although they tried to find what was wrong with me, God had a bigger plan for me.

I was born with reflux.... at 6 weeks I developed aspirated pneumonia and had to be hospitalized. I got better and then took a turn for the worst and had to be transferred to Cardinal Glennon Children's Hospital in St Louis, Mo. Mom and dad are very grateful for the Dr Salarda...... had she not have come to check on me that night who knows what would have happened. I got better after 6 days in CGCH and came home.... I had meds for my reflux so I could actually keep my formula down and started doing well....... For a while that is... In August of 94, when I was 8 months old they found out that I wasn't growing. SO mom and dad were sent back to CGCH with me to see if we could find out why. The first Dr didn't know so she sent us to an endocrinologist after drawing six tubes of blood from me. So we wait for that appointment........ and we didn't make that appointment because someone had decided that they needed our gas more than we did and had cyphoned it out the nite before.......... and we didn't realize and ended up running out of gas on  the interstate on the way to the appointment. ........ So mom rescheduled.......... and we waited again.....

February 8th, 1995 was the day and it had finally come. We go to the appointment and those tests had come up with nothing and by now I hadn't grown in eight months........ So that Dr sets up an appointment with genetics.......

The next day I started getting really tired and just not acting myself. Mom knew that we had an appointment with my Dr the flowing day so she waited. We go to that appointment and I have an ear infection. SO we start meds for that. This was on Friday, February 10, 1995. That evening I started running a low grade temperature that mom and dad couldn't get to break. By Saturday at noon, Dad thought we needed to go to the ER so we did and were left in the waiting room for 4 1/2 hours until the ER doctor finally called me in and said that he didn't have time to look at me and called Dr Salarda. She came in did what she coudl and told me to call her in the morning. Mom and dad took me home and hoped that this would get better.


Don't take your organs to heaven...... heaven knows we need them here!!!
Joseph Lee Dobyns, Jr
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And we have just one last thing to say................

This is my Great Gma Dobyns holding my sister SUsanne and I an Susanne's 2nd birthday party. That's my papaw in the background there. Gma and I are both angels now.

The next morning was Sunday and Mom forgot that the Dr had Mass when she called..... So mom and dad waited it out at a friend's house with me. But while we were there waiting things took a turn for the worse. I had a siezure........ Mom and dad rushed me to our community hospital and I was flown to CGCH.

Once there, they did a Ct scan on my brain and found some massive bleeding. I was rushed to surgery and mom and dad were shuffled from room to room without being told anything.

Finally, someone decides they should know what is going on......... they are told that the situation is very bad and asked who had babysat me in the last couple of days.......... I was with mom and dad the whole time so no one had been babysitting me.........

The story gets kind of ugly here......... we were told that the only way this massive bleeding could have happened was if  he had been hit and/or thrown....... So we now we're losing our son and couldn't be alone with our daughter.......... JJ was pronounced brain dead on the morning of Monday, February 13, 1995. While waiting for a glimmer of hope to come before they could pronounce him gone and still not knowing what had caused this we made a decision to donates JJ's organs so that someone wouldn't have to go through the ordeal that we were going through at the time.

We dealt as best we could with DCFS....... they were very nice through this situation...... And finally on Tuesday, the autopsy came back.............. At the ripe old age of 13 months our baby boy had three primary cancers............. He had a Wilm's Tumor in his right kidney, a nueroblastoma in the adrenal gland sitting on top of the right kidney, and a primitive neuro-epithelial tumor in the right frontal lobe of his brain. We are told that this is a silent part of the brain and that since he had no loss of milestones they hadn't seen a reason as of yet to do a CT scan to diagnose why he wasn't growing. We are told that even though his right kidney was EIGHT times the size of his left kidney that they couldn't feel the Wilm's tumor... The treatment we recieved at CGCH on this occasion we are told should be considered human nature because tehy were sure that he had been abused even though he had no actual signs of abuse........... only classic signs of head trauma......... a low grade temp that can't be broken, lethargy....... he had one retinal hemmorage and one massive hematoma which isn't consistent with abuse...........

Through this we have remained strong and been made stronger for it....... Yes there is still anger involved........... I don't know as any of that will ever go away completely. I get angry on Christmas Eve because I shouldn't have to go to a cemetery to say Happy Birthday and Merry Christams to my son BUT........... in the same token....... he didn't suffer as long as he would have had we have found his cancers......... and there are kids alive out there somewhere that in some small way keep him alive............

God has his plans and although we may not like the outcome from  them we have to accept them......... All through JJ's life we were given hints that everything was going to be ok............. and that helps us to get through it. There will always be an empty spot our laps, at the dinner table, in the car, everywhere that we go. But we have an angel that watches over us and his sisters and brother.

Grief is a long hard road but somehow it does get somewhat better.



Here is the pic taken of me at the hospital when I was born. I weighed 5lbs 0oz and was 17 1/2 inches long.
Here I am at one riding the rocking horse that papaw made for me.
Please come again........ Mom is going to add some more pics soon......... and don't forget to sign my guestbook!! Angel Hugs!!!